Skip to main content
Sri Sukarni sits in a motorbike sidecar, looking at the camera.
Sri Sukarni, chairperson of the Association of Women with Disabilities [HWDI] of NTB Province

News

‘I Never Imagined I Could Do This’

As a 2022 DJP Fellow, Sri Sukarni Found Herself Behind the Camera for the First Time, Telling Stories of People with Disabilities Through Her Own Lens.

November 23, 2022

WEST LOMBOK, Indonesia – When she joined the Disability Justice Project as a filmmaking fellow in 2022, Sri Sukarni was no stranger to cameras. As chairperson of the Association of Women with Disabilities (HWDI) of NTB Province, Sukarni was used to giving media interviews. While these interviews gave her a chance to shine a light on local disability rights issues, she says she wasn’t always happy with the way the news portrayed people with disabilities in her country.  “I sometimes feel happy when there is a story about people with disabilities experiencing success and independence,” says Sukarni. “However, I am sad to see when the media presents people with disabilities as though they can’t do anything, as if we should be pitied, supported. If the media is like that, my heart is very sad.”

A film by Delainey LaHood-Burns. Video includes audio descriptions. Click here for descriptive transcript.

During her time as a DJP Fellow, Sukarni experienced for the first time what it was like to tell her own story – shaping the narrative as she saw it. She says the feeling it brought her was relief. “Relief, the first is relief,” Sukarni says. “The second is that I feel happy. Of course, I feel happy to be able to produce videos, which I never imagined I could do this.”

Through the Association of Women with Disabilities in Indonesia (HWDI), Sukarni dedicates much of her time to lifting up women with disabilities in her community. Founded in 1997, the organization has branches all over Indonesia that are run by and for women with disabilities. “HWDI fights for the rights of women with disabilities because we know that women with disabilities face two layers of discrimination,” Sukarni says. “One for being women and the second for being women with disabilities.”

Sri Sukarni addresses the audience at a public meeting.
Sri Sukarni addresses the audience at a public meeting.

The first video Sukarni produced in partnership with the DJP tells the story of Sustia Rini, a woman who faces exactly this type of layered discrimination. In addition to living with a disability, Rini is a survivor of domestic violence. The video follows her on her journey to access affordable health care for her family after leaving her husband. “In Indonesia, women with disabilities are often the ‘poorest of the poor’ and are particularly vulnerable to gender-based violence,” says the introduction to Sri’s film on the DJP website. “Rini has been no exception. In 2019, she left her husband because of abuse, and she has not had any type of permanent employment. Now, every time she or someone in her family needs healthcare, she faces difficult choices that could drive her and her children further into poverty.”

There are still many more stories that Sukarni wants to tell using the skills she’s learned from the DJP. She’s particularly interested in examining local issues that people with disabilities face in her community, like the challenge of accessing a good education and employment. But one of her top concerns is accessibility. “There’s still a lot I want to produce about how are the public service buildings in NTB [West Nusa Tenggara] not yet friendly to people with disabilities,” says Sukarni. “This is what I want to convey to the media, to the government. That we also have the same rights, that we also want to feel comfortable when we use public services.”

Delainey LaHood-Burns is a digital content producer based in New Hampshire and a contributor to the Disability Justice Project. @2022 Disability Justice Project. All rights reserved.

News From the Global Frontlines of Disability Justice

Yeni Rosa Damayanti speaks during an online forum on Indonesia’s Disability Card and Disability Certificate system. A sign language interpreter and another participant appear on screen.

Reducing the Disability Tax

Indonesia has adopted a new regulation aimed at reducing the extra costs disabled people face, guaranteeing discounts across nine sectors, including health care, transportation and assistive devices. But disabled Indonesians say fees and administrative hurdles involved in obtaining the documents needed to access those rights could leave some people behind. As the government begins implementing the policy, advocates are calling for disability assessments to be free and accessible.

Read more about Reducing the Disability Tax

Two African men sit on a red motorcycle in front of a brightly colored graffiti mural.

Joy As Resistance

In Kenya, queer and disabled people are finding common ground around questions of identity, access, family, and belonging. Ahead of a Nairobi event exploring where disability and queerness intersect, organizers and participants talk about the communities they have found and the spaces they are trying to create. “Queer people and disabled people share way more than they think they do,” says one organizer. The event will use storytelling, art, performance, and what its organizers call “queer joy” to start a conversation they say is long overdue.

Read more about Joy As Resistance

Malaysian activists gather in a circle outside to protest.

The Politics of Waiting, Wanting, and Hoping

In Malaysia, disability exclusion is rarely one dramatic denial. More often, writes Beatrice Leong, it is “a series of ordinary delays” — inaccessible schools, symbolic consultations, policies without enforcement, and a system that asks disabled people to wait patiently for dignity and belonging. Blending personal reflection with political analysis, Leong examines what happens when inclusion is promised repeatedly, but justice never fully arrives.

Read more about The Politics of Waiting, Wanting, and Hoping

Two disability rights signing ceremonies: the UN Convention on the Rights of Persons with Disabilities at left and President George H. W. Bush signing the Americans with Disabilities Act at right.

Beyond the ADA

The ADA’s influence extends far beyond the United States. It helped shape a growing international approach to disability rights that eventually contributed to the development of the CRPD. But global disability movements have also expanded on ideas that U.S. law has yet to fully embrace. “I think many U.S. disability rights activists were surprised to find out how much we could learn from the international community,” says Eric Rosenthal, founder and executive director of Disability Rights International.

Read more about Beyond the ADA

A man using a hand-powered tricycle wheelchair sits beneath a large leafy tree at the edge of a dry field in rural Nigeria.

Forgotten People

As Nigeria’s growing insecurity crisis spreads, disabled people face barriers that can make escaping violence far more difficult. Across the country, they describe inaccessible emergency warnings, challenges reaching safety, disrupted livelihoods, and limited access to assistance during times of crisis. Their stories reveal how conflict is experienced differently when mobility, communication, and support cannot be taken for granted and how disability is too often overlooked in emergency planning and response.

Read more about Forgotten People

A black-and-white photo of Marian holding a camera to her eye in a field of sunflowers.

The Cost of Surviving

After years of failed treatments for complex PTSD, Marian Siljeholm followed an unlikely lead into the underground world of MDMA-assisted therapy. What began as a search for healing became a journey through the science of trauma, the politics of prohibition, and the hidden global network of people risking their freedom to help others reclaim their lives. Their stories would change her own. As Marian writes, “The next morning, I woke with a thought as real as the bed: This is the first day of my life.”

Read more about The Cost of Surviving