Skip to main content
An illustration about an Indonesian man with a disability seeking social protection.
In Indonesia, social assistance eligibility is based on family income, not individual income. Illustration by Kinanty Andini.

News

Right to Access Social Assistance

Play audio version

Indonesian Social Assistance Policy Ignores the Existence of Individuals with Psychosocial Disabilities

August 2, 2022

Translated from Bahasa Indonesia.

Click here for the Bahasa Indonesia version of this article.

JAKARTA, Indonesia — “Bambang,” an Indonesian Mental Health Association (IMHA) member with schizophrenia who wishes to remain anonymous, faces a dilemma. He is unemployed, but because he lives with his mother and sister in a house on the edge of a major road in Jakarta, he is ineligible for public social assistance. While Bambang doesn’t work and has no income of his own, his eligibility for social assistance is based on his family’s income, not his own. Because his mother and sister live in a larger house in a wealthier part of town, they are considered too “rich” for him to qualify for assistance. This leaves Bambang dependent on others for his survival. If he lives with his family, he is denied social assistance; if he doesn’t live with his family, he will become homeless.

According to Yeni Rosa Damayanti, chairperson of IMHA (also known as Perhimpunan Jiwa Sehat), many Indonesians with disabilities are forced to live with family members – cousins, aunts, parents – in garages and in other less than ideal housing situations. Damayanti says government social protection schemes are usually based on the family, not the individual. To receive social assistance from the Indonesian government, a citizen undergoes the Integrated Social Welfare Management (DTKS) process. Registrants must not own property, a car, or live in a “rich” area, among other criteria. Since Bambang’s family home is valued at over 66,000 U.S. dollars, he is ineligible for government support. Such criteria deny assistance to many persons with disabilities.

The Right to Live Independently

Indonesian Law No. 8 of 2016 Article 17 guarantees the “right to social welfare for Persons with Disabilities [including] social rehabilitation, social insurance, social empowerment, and social protection,” and the UN Convention on the Rights of Persons with Disabilities (UNCRPD) Article 19 recognizes the right of persons with disabilities to choose where they live with no obligation “to live in a particular living arrangement.” Overall, persons with disabilities have the right to live on their own – to not be dependent on anyone for their survival – but Indonesia’s social assistance policies make this all but impossible.

A 2020 survey led by the Disabled People’s Organization (DPO) Network for a More Inclusive Covid Response found that while 9 percent of Indonesians have a disability, only 3 percent receive regular social protection benefits. In a report accompanying the survey, the authors note that the voices of persons with disabilities are often missing in policymaking –  even though this is a requirement of the UNCRPD. 

Inaccessible Application Process

Adding to the problem is the fact that the DTKS website page is inaccessible; its performance is slow because millions of Jakarta inhabitants are accessing the website at the same time and because it shares servers with other ministries. DTKS registrants only have 30 days to sign up once the government announces registration re-opening periods. As a result of the website’s slow performance compounded by Jakarta’s population size, many people like Bambang do not have enough time to register before the deadline. During his registration period in February, Bambang tried to access the website multiple times until he gave up and finally registered with the help of a local government official.

First built in 2015, the Ministry of Social Affairs DTKS system includes data on Social Welfare Service Recipients (PPKS) for programs like the Family Home Program (PKH), Basic Food Assistance, and the Jakarta Persons with Disabilities Card (KPDJ), the latter of which Bambang sought but was denied. Today, he is left to make ends meet. He finds it difficult to find a job and seeks assistance from organizations of persons with disabilities like IMHA. “I don’t get cash assistance at all … I only get social assistance channeled through organizations,” Bambang says. He is not the only IMHA member facing this issue. Other IMHA members have been forced to live with families that the government does not recognize as poor enough to receive assistance.

Data collection inconsistencies in Indonesia add fuel to the flame. “The government must be more serious in taking care of this disability problem, starting from comprehensive and thorough data collection … There must be a reliable data unit that is used to distribute assistance that is the right of disability,” says Bambang. A study by the National Team for the Acceleration of Poverty Reduction (TNP2K) notes that access to social protection, one of the various rights persons with disabilities have without discrimination, tends to be limited for various reasons. These include limited data information related to disability in Indonesia. Such limited information reduces the urgency for the government to prioritize and allocate resources to persons with disabilities.

The study mentions persons with disability face challenges in accessing different birth certificates, too. A 2014 study conducted by a partnership between the Indonesian and Australian governments for programs endorsing the values of justice (AIPJ) found that inaccessible offices and “complicated procedures” make it hard for persons with disabilities to apply for and receive legal identity documents. Another 2017 study reveals that the main reason Indonesian children (with or without disabilities) do not have birth certificates, a required document to access services, is cost. Many parents also don’t realize the need for such a document – and that they are entitled to these public services. Although the TNP2K and Australian Government study says the Indonesian government has taken steps to increase access to birth certificates for all children, inaccessible government documents exacerbate the challenges persons with disabilities face when attempting to register for social assistance. 

Bambang remains hopeful he will receive social assistance in the future: “I really deserve [the Jakarta Persons with Disabilities Card] KPDJ because I am a disabled person who requires more money.” 

Kinanty Andini is a 2022 DJP fellow and affiliate with the Indonesian Mental Health Association (IMHA) also known as Perhimpunan Jiwa Sehat. @2022 Indonesian Mental Health Association (Perhimpunan Jiwa Sehat). All rights reserved.

News From the Global Frontlines of Disability Justice

Jean Marie Vianney Mukeshimana, a blind Rwandan man, votes with a Braille ballot.

Advancing Democracy

Rwanda has made significant progress in making its elections more accessible, highlighted by the July 15 general elections where notable accommodations were provided. This was a major step forward in disabled Rwandans’ quest for equal rights and participation. “You cannot imagine how happy I am, for I have voted by myself and privately as others do accessibly,” says Jean Marie Vianney Mukeshimana, who used a Braille voting slate for the first time. “Voting is a deeply emotional and meaningful experience for a person with any disability in Rwanda, reflecting a blend of pride, empowerment, and hope.”

Read more about Advancing Democracy

A photo montage of inaccessible voting places across the US.

Barriers to the Ballot

Despite legislation like the Americans with Disabilities Act, barriers at the polls still hinder — and often prevent — people with disabilities from voting. New restrictive laws in some states, such as criminalizing assistance with voting, exacerbate these issues. Advocacy groups continue to fight for improved accessibility and increased voter turnout among disabled individuals, emphasizing the need for multiple voting options to accommodate diverse needs. ““Of course, we want to vote,” says Claire Stanley with the American Council of the Blind, “but if you can’t, you can’t.”

Read more about Barriers to the Ballot

A collage of photos showing inaccessible polling stations.

Democracy Denied

In 2024, a record number of voters worldwide will head to the polls, but many disabled individuals still face significant barriers. In India, inaccessible electronic voting machines and polling stations hinder the ability of disabled voters to cast their ballots independently. Despite legal protections and efforts to improve accessibility, systemic issues continue to prevent many from fully participating in the world’s largest democracy. “All across India, the perception of having made a place accessible,” says Vaishnavi Jayakumar of Disability Rights Alliance, “is to put a decent ramp at the entrance and some form of quasi-accessible toilet.”

Read more about Democracy Denied

An illustration of DJP fellow Esther Suubbi and some of her peers.

Triumph Over Despair

DJP Fellow Esther Suubi shares her journey of finding purpose in supporting others with psychosocial disabilities. She explores the transformative power of peer support and her evolution to becoming an advocate for mental health. “Whenever I see people back on their feet and thriving, they encourage me to continue supporting others so that I don’t leave anyone behind,” she says. “It is a process that is sometimes challenging, but it also helps me to learn, unlearn, and relearn new ways that I can support someone – and myself.”

Read more about Triumph Over Despair

Daniel Mushimiyimana from the Rwanda Union of the Blind, sits in a row of chairs at a conference.

‘Our Vote Matters’

As Rwanda prepares for its presidential elections, voices like Daniel Mushimiyimana’s have a powerful message: every vote counts, including those of citizens with disabilities. Despite legal frameworks like the UN Convention on the Rights of Persons with Disabilities, challenges persist in translating these into practical, accessible voting experiences for over 446,453 Rwandans with disabilities. To cast a vote, blind people need to take a sighted relative to read the ballot. An electoral committee member must be present, violating the blind person’s voting privacy. “We want that to change in these coming elections,” says Mushimiyimana.

Read more about ‘Our Vote Matters’

Srijana KC smiles at the camera. She has long dark hair and is wearing a red scarf and green cardigan sweater.

Voices Unsilenced

Often dismissed as a personal concern, mental health is a societal issue, according to Srijana KC, who works as a psychosocial counselor for the Nepali organization KOSHISH. KC’s own history includes a seizure disorder, which resulted in mental health challenges. She faced prejudice in both educational settings and the workplace, which pushed her towards becoming a street vendor to afford her medications. Now with KOSHISH, she coordinates peer support gatherings in different parts of Nepal. “It is crucial to instill hope in society, recognizing that individuals with psychosocial disabilities can significantly contribute,” she says.

Read more about Voices Unsilenced