News
Controlling Your Own Narrative
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Introducing DJP Mentor Cara Reedy
June 7, 2022
“[My] childhood was privileged in one respect in that I didn’t want for anything material and had the best educational opportunities. But, as a Black dwarf girl child, I was harassed a lot because of my dwarfism,” says Cara Reedy, a journalist with achondroplastic dwarfism and a newly appointed mentor to the Disability Justice Project. “People felt even freer back then to comment on my body, and many made a point to let me know I wasn’t normal,” she says.
Now 46, Reedy addresses the oppression she’s experienced as a little person through her work as a journalist, actor, comedian, and film director. In 2019, she released “Dwarfism and Me,” a documentary with co-producer Tim Silverstone, for The Guardian. “It was really well received by the audience. Most people were not aware of dwarf history in America. We were thanked a lot for bringing it to the forefront. There is so much disability history that needs to be explored and brought to light,” she says.
The documentary’s concept was drawn from how “history and our culture created this really abusive environment for people with dwarfism,” how “dwarfs were … talked about in … pre-modern culture and … what the effects of that are today,” says Reedy. Through “Dwarfism and Me,” Reedy and Silverstone found that persons with dwarfism still live with the effects of sideshows and circuses, and this objectification of persons with dwarfism has changed into reality shows like “Little People Big World,” “Little Women” (of Atlanta, NY, LA) and, says Reedy, “pretty much anything that comes on The Learning Channel.” Selene Luna, a Mexican-American comedian and actress with dwarfism, says in “Dwarfism and Me” that “little people are … portrayed in entertainment as a creature, a mystical monster.” Luna asks, “Why is it not important for little people not to be presented in a dignified manner?”
In 1998, Reedy received a political science degree at Loyola University in Chicago. She studied abroad at Lee Strasberg Theatre & Film Institute in London, where actress Mariana Hill taught her method acting. Since graduating, Reedy worked at CNN for ten years and has done freelance work with NPR. She has been in newsrooms for over 15 years and has passionately focused on documentary work.
Reedy believes persons with disabilities still face limited access to power, making it difficult for them to control their narratives. She suggests unity among persons with disabilities across the globe – for the goal of liberation and as a call to action. Fifteen percent of the globe’s population lives with disabilities. “Liberation looks different in different countries because systems are different in different countries, so I don’t feel like there’s a one-size-fits-all system fix, but there is a one group, one idea that we all should be raising each other up across the globe.”
Powered by her passion for creating spaces for media professionals with disabilities to lead conversations that most affect their lives, Reedy joined the Disability Media Alliance Project (DMAP) in June 2020 after its director watched “Dwarfism and Me.” According to its website, DMAP strives to bring the disability community and the media industry together “to promote accurate representation of people with disabilities” and to “eliminate disability stereotypes and misinformation in news, television, film, and other media.”
Reedy now works at Storyline Partners, a collection of leading advocacy organizations collaborating with the entertainment industry to tell more accurate and nuanced narratives that reflect the realities and richness of different communities. Though she’s left DMAP, Reedy continues to build the U.S.-based Disabled Journalists Association, a “place where journalists can come together and kind of have one voice to speak to newsrooms about their coverage of disabled people,” she says.
Reedy recounts experiences with discrimination in her career, particularly during her 10-year stint at CNN. “There was sort of a refusal to believe that I have these skills. I watched people that I trained move up and be executive producers while I still was on the bottom rung, and quite frankly I had to leave newsrooms in order to leave the discrimination,” she says. “It’s a difficult place,” In the next 10 years, Reedy aims to do more documentaries, movie-making, and screenwriting.
At the Disability Justice Project, Reedy looks forward to meeting more journalists and people with disabilities around the globe. She’ll be mentoring the upcoming cohort of Indonesian fellows. Additionally, she wants to understand how different cultures and systems treat persons with disabilities across Africa, where the DJP’s second cohort of fellows this year will be based. “I’m excited for this program,” she says. “I just think it’s the neatest thing.”
Nissy Namuyomba is a 2021 DJP Fellow and an administrative assistant at MADIPHA. @2022 MADIPHA. All rights reserved.
News From the Global Frontlines of Disability Justice
Rwanda’s Marburg Crisis
As Rwanda confronts its first-ever Marburg virus outbreak, people with disabilities face heightened risks — not only from the virus but also from the lack of accessible health information. “Without proper accommodations, such as sign language interpreters, captions, Braille, or visual aids, the Deaf and DeafBlind community may miss crucial information about how to protect themselves, symptoms to watch for, or where to seek help in case of infection,” says Joseph Musabyimana, executive director of the Rwanda Organization of Persons with Deaf Blindness.
Capturing Vision Through Sound and Touch
Last summer, the DJP trained Indigenous activists with disabilities from the Pacific on the iPhone camera to create a documentary series on disability and climate change. With VoiceOver, the iPhone provides image descriptions for blind and low-vision filmmakers and offers other accessible features. “If you think about it, it doesn’t make sense for a blind person to use a camera,” says DJP filmmaker Ari Hazelman. “The iPhone gives you more avenues to tell your story in a more profound way as a blind person.”
Work for All
The We Can Work program equips young Rwandans with disabilities to navigate barriers to employment through education, vocational training, and soft skills development. By fostering inclusive workplaces and advocating for policy changes, the program aims to reduce poverty and promote economic independence. Participants like Alliance Ukwishaka are optimistic that the program will enable them to achieve their dreams and showcase their potential. The initiative is part of a larger effort to support 30 million disabled youth across seven African countries.
Global Recognition
Faaolo Utumapu-Utailesolo’s film “Dramatic Waves of Change” has been named a finalist in the Focus on Ability International Short Film Festival. The film, completed during a Disability Justice Project workshop in Samoa, highlights the impact of climate change on people with disabilities in Kiribati. Utumapu-Utailesolo, who is blind, used an iPhone with accessibility features to create the film. “Do not leave people with disabilities behind when [you] plan, implement, and monitor programs regarding climate change and disaster,” she says. Her achievement is a testament to the power of inclusive filmmaking.
Advancing Democracy
Rwanda has made significant progress in making its elections more accessible, highlighted by the July 15 general elections where notable accommodations were provided. This was a major step forward in disabled Rwandans’ quest for equal rights and participation. “You cannot imagine how happy I am, for I have voted by myself and privately as others do accessibly,” says Jean Marie Vianney Mukeshimana, who used a Braille voting slate for the first time. “Voting is a deeply emotional and meaningful experience for a person with any disability in Rwanda, reflecting a blend of pride, empowerment, and hope.”
Barriers to the Ballot
Despite legislation like the Americans with Disabilities Act, barriers at the polls still hinder — and often prevent — people with disabilities from voting. New restrictive laws in some states, such as criminalizing assistance with voting, exacerbate these issues. Advocacy groups continue to fight for improved accessibility and increased voter turnout among disabled individuals, emphasizing the need for multiple voting options to accommodate diverse needs. ““Of course, we want to vote,” says Claire Stanley with the American Council of the Blind, “but if you can’t, you can’t.”